How to Travel with Chronic Illness: Stress-Free Planning and Must-Have Essentials

Planning a family vacation when you’re living with a chronic illness can feel overwhelming. I know this all too well. There was a time when I let that anxiety steal my chance to create memories—I withdrew and stayed home. Bummer! I told myself it was easier to avoid the stress than to deal with the endless “what-ifs.” Packing alone used to feel like a marathon, and the fear of managing a flare while away? It was enough to keep me grounded.

But here’s the truth: staying home was harder. I was missing out on moments that could have filled my heart. So, I flipped the script. I built a system, found a routine that worked for me, and now? I pack those bags with confidence. Sure, there are still challenges, but I’ve learned that with a little planning, a lot of love, and the right mindset, traveling doesn’t have to be a stressful experience—it can be an adventure.

Let’s dive into how you can do the same. ✈️❤️

Choosing the Right Destination

Let’s get one thing straight—there’s no such thing as a “bad” destination, only a bad mindset. But I get it! Fear can be absolutely gripping. I used to obsess over potential emergencies, sometimes before I even hit “book.” I’d scour maps, locate the nearest hospital, and stress about access to medical care before I allowed myself to imagine the fun.

While being prepared is essential, I’ve learned that focusing too much on the “what-ifs” can overshadow the excitement of where I’m going. Now, I approach trip planning with a different mindset—I look for destinations that make life easier for me. Whether it’s a resort that offers flexible dining options to accommodate food sensitivities or a theme park like Disney that’s known for its amazing guest services, I make choices that prioritize both fun and safety.

When choosing a destination, consider:
✅ Climate: Avoid extreme heat or cold that might trigger symptoms.
✅ Dining Flexibility: Research places that can adjust to dietary restrictions.
✅ Medical Access: It’s okay to note nearby healthcare options—just don’t let that be the first thing on your list.

Remember, adventure is possible anywhere when you’re prepared and confident. So dream big, plan smart, and get ready to create memories that last a lifetime! 🌍❤️

Packing Essentials for Health and Comfort

I used to be a chronic over-packer. Seriously—packing felt like prepping for a survival mission. I’d throw in everything I might need, just in case. But guess what? That approach left me more stressed and overwhelmed than prepared. Now, I pack with confidence and calm.

The secret? A small essentials bag that never leaves my side. This one little bag gives me peace of mind because I know I have everything I need within arm’s reach. For me, that includes:
💧 Water – Staying hydrated is a must, especially when managing Mastocytosis.
💊 Cromolyn and Benadryl – My go-to meds that I never travel without.
👄 Lip Balm – Medications can dry me out faster than the Sahara Desert! Keeping lip balm handy saves me from that uncomfortable, cracked feeling.
📄 Small Emergency Instruction Card – A quick reference with my medical information in case of an emergency.
🕶️ Sunglasses – My eyes are super sensitive to light, so sunglasses are non-negotiable. I found bifocal sunglasses on Amazon that are a total game-changer—perfect for protecting my eyes and reading the fine print on menus! For even more fun and fashion, I love Pair Eyewear, which lets you swap out different styles for a fresh look.

Having these essentials close means I’m ready for whatever comes my way—whether I’m exploring a new city or lounging by the beach. And the best part? No more packing overload! I stick to the basics, pack smart, and leave the unnecessary stress behind.

So, pack those bags, but keep the most important things close—and you’ll be ready to embrace adventure with confidence! 🎒✨

Building in Rest Days and Flexibility

If there’s one thing I’ve learned about traveling with a chronic illness, it’s this: pushing through isn’t worth it. I used to pack our itineraries so full that there wasn’t a minute to breathe. But guess what? By day two, I was wiped out, and the rest of the trip felt like I was running on fumes.

Now, I build rest days into every trip—and let me tell you, it’s a game-changer. Whether it’s a lazy afternoon by the pool or a quiet morning sipping coffee while everyone else explores, these breaks give my body the reset it needs to keep going. Rest days don’t mean missing out—they mean enjoying more.

I also keep our plans flexible. I used to feel like we had to stick to a rigid schedule, but now? If I wake up feeling off, I give myself permission to shift things around. Maybe we hit the beach later or swap a busy sightseeing day for something slower. And guess what? Those spontaneous moments often become the most memorable.

Here’s what works for me:
🕰️ Alternate Busy Days with Rest Days – A jam-packed theme park day? Follow it up with a low-key pool day.
💤 Plan Quiet Mornings or Evenings – Sometimes, just a few extra hours of rest makes all the difference.
🎭 Be Willing to Pivot – If plans need to change, go with the flow. Flexibility is your best friend!

⚠️ PSA Alert! When booking accommodations, always choose refundable options and, if traveling internationally, add the insurance package. Many health insurance plans don’t provide coverage outside the country, and trust me—you don’t want to be caught off guard in a foreign ER. A little extra protection gives you peace of mind so you can focus on making memories, not stressing over “what-ifs.”

Rest isn’t a detour—it’s part of the journey. And when you give yourself that grace, you’ll have the energy to make even more beautiful memories. 🌸✨

Staying Hydrated and Replenished:

Hydration is EVERYTHING—especially when you’re managing a chronic illness. But let’s be real…traveling can mess with your routine, and before you know it, dehydration sneaks up on you. I used to think drinking enough water was enough, but I’ve learned that sometimes your body needs more than just water.

That’s where Liquid IV comes in—and let me tell you, it’s a total game-changer. I always pack a few packets in my bag because they help replenish the electrolytes my body loses, especially in hot climates or after a long day of activity. One packet mixed with water gives me that extra boost and keeps me feeling balanced and energized.

Here’s why I love it:
💦 Hydrates Faster Than Water Alone – Perfect after a flight or a long day in the sun.
⚡️ Replenishes Electrolytes – Keeps me from feeling drained when I’m on the go.
🎒 Travel-Friendly Packets – Easy to toss in my essentials bag, ready for any adventure.

My Favorite Trip: Disney World—A Lesson in Pacing and Grace

Hands down, my favorite trip is Disney World. We’ve been countless times, and each trip is packed with magic, laughter, and unforgettable memories. But let me be real—there was one trip that taught me a valuable lesson.

We went just days after I was discharged from the hospital following a nasty flare. I was determined to push through for my kids and make magical memories. But the Florida heat? It hit hard. By midday, I was completely drained, and we had to leave halfway through. I felt heartbroken. As a mom, I wanted to give my kids every moment of joy, but my body was telling me otherwise.

That tough day taught me something important: You don’t have to do it all to create magical memories. Since then, I’ve learned to pace myself and plan smarter so I can truly enjoy every magical moment.

ps……. ask for the gluten free mickey waffles with real maple syrup!

Here’s What Works for Me Now:

🍳 Start Slow and Fuel Up – A good breakfast sets the tone. Protein and hydration keep me going.
☀️ Escape the Midday Heat – I scope out indoor dining spots where we can cool off and recharge during the hottest hours.
🏨 Rest and Recharge at the Hotel – Taking a mid-afternoon break back at the resort gives me the energy to enjoy the nighttime fun.
🎆 Return Refreshed for Evening Magic – Once the sun starts to set, I’m ready to soak up the fireworks, parades, and all the magic.

The Real Secret: Plan for Rest, Hydration, and Balance

✨ Hydrate Constantly – I sip on water (and add Liquid IV when needed) all day.
🏃‍♀️ Move at a Comfortable Pace – Slow and steady wins the race—and keeps me feeling strong.
💤 Give Yourself Grace – It’s okay to adjust plans. The best memories aren’t about checking off every ride—they’re about being present and enjoying the moment.

Now, when I plan a Disney trip, I build in time to rest, refuel, and recharge. And guess what? Those slower, more intentional moments have led to some of the most magical memories. 💕🏰Lesson learned: Magic happens when you take care of yourself, too!